It’s been a while….
Haven’t really been able to put thoughts into words. At least ones that I can type and express.
It’s been two years. (Yes, little over)
Not a day goes by when I don’t ache to see you. Hear you. Long for that sweet giggle. Or the daily argument with your sister.
It almost feels like I live in a parallel universe. The one with you in it. And now the one without. And the two blend, and overlap.
But the thing is…..Life feels suspended. Yes, we do our everyday routines. Work. Sleep. Repeat.
But there is always that hole. That missing puzzle piece.
And it’s irritating.
How do you live with a piece of your heart gone?
In a forever haze I guess.
Jason and I, we think of all the things we want to do and see….things that you would have enjoyed. And we go. And try to experience as much as possible–because we don’t know when our last day on this earth will be. No one does.
Back in the fall 2016, we went to San Francisco as a “less than whole” family. We put the Z stickers on every thing we could. “Leave her mark” on the things she would have loved to have experienced. We have continued this over the last 2 years. This week, I had someone I barely know, comment to me that she “found” a Zayla sticker when they were on vacation.
It caught my breath. And just for that moment, I knew. She is with us. All the time. And she is loving the stickers being placed all over, with her in mind.
Currently we have quite a few stickers, but I was thinking of ordering more. If any one would like some for their next adventure to show Z, let me know. Donation of $1 per sticker would be appreciated.
Tonight, I get to speak about childhood cancer research at a benefit for the Team Make a Difference fundraiser. TMAD is a non profit that does room makeovers for those battling various diseases/illnesses. What better way to heal, then in your own sanctuary? Preparing my speech has made me think about what I need to share.
Last time I looked at the American Cancer Society’s 990 Tax Forms was back in 2014. Well, unfortunately not much has changed. It’s shocking to me that anyone would want to donate money to this organization. The numbers are ridiculous. Cancer IS BIG BUSINESS. And that makes me sad. I see at least one patient every week being newly diagnosed with cancer. That is insanity. When will people wake up and stop donating money to organizations that are not fiscally responsible???
Not sure how much my blogging makes a difference, but I must share. Here it goes:
AMERICAN CANCER SOCIETY 2016 990 TAX FORMS
Revenue (your donations) $813,199,479
Fund raising fees. $170,957,35121%
Research grants $102, 873,77912.6%
Patient support, and
prevention programs $ 82,946,34710.4%
And once again, the Organization’s Mission statement on their tax form states: To save lives, celebrate lives, and lead the fight for a world without cancer.
When over half of your revenue goes to salaries? Sounds like BIG business to me. Wake up America! Stop funding the wealthiest “non profit” in the world.
And this is why we do NOT Relay for Life. Don’t ask us to. EVER.
Want more information? Check out this link: http://naturalsociety.com/cancer-drugs-cost-american-cancer-society-exposed-67380/
Here are some great organizations that DO fiscally raise money for research. IF research is your goal.
Alex’s Lemonade Stand Foundation
St Jude Children’s Research Hospital
Pancreatic Cancer Action Network
Colorectal Cancer Alliance
Breast cancer research foundation
Lynn Sage Cancer Research Foundation
Obviously there are more organizations, but these are the ones that STAND out, and do a very good job supporting research without spending TONS of money on salaries and advertising.
Enjoy your day…….